May 31, 2001 - Hello again, After recently going for a brain activity scan on Samuel we have found out that he has seizure activity. We were very upset as this was not the news we were after. We are unsure if this has meant more brain damage or what the effects were. This information came to hand after changing our doctor for Samuel. Our existing doctor was a little disappointing in his care of Samuel.

I believe he was just too exhausted every time we saw him. Our new doctor seems to be very pro-active in his approach. Who knows how long this activity was happening. This may have been the result of the new drug he is on to relax his muscles.

Potentially is can bring on seizure and in fact Samuel has at least two we know of. Again the concern is more brain damage. Samuel will also be getting his button soon to feed him via a direct route to his stomach. We have an appointment with a surgeon soon. His appointment with the neurologist is today so we will soon know more. I will let you know after we do.